Many apologies for my long absence. It’s been about two months now, since I’ve written a proper piece… and I’m afraid this isn’t going to be it either.
I’m not abandoning the blog, although it may feel that way to some of you. I have plenty still to write about, it’s just been a very challenging time in terms of managing my energy and pacing.
I want to laugh really because I’m so terrible at pacing! My energy is such that every small task seems to need to be paced.
Anyway, the point today is to say that I’ve had to prioritise energy management in the hopes of stopping these crazy swings of a couple of productive days, followed by a couple of days in bed.
I will be back, when I can, if I can just get over this bacterial chest infection and Christmas (which I love love love, but is hard work!).
Speak to you all soon my lovelies and if I don’t say so before hand, have an amazing Christmas with your families, surrounded by love and all the good things.
Action for M.E. have published another good story today, I relate to it in many ways and it brought a tear to my eye, although I think she’s much worse off than me. Teaches me to be grateful for what I have. Here’s the link.
Action for M.E. have put up a pretty powerful video today. Here’s the link so you can watch it and share it. I’ve shared it to my Facebook page too, if you’re struggling to access it. It got a few heartfelt reactions from my peeps.
What does M.E. feel like? See people affected by the illness talk about their personal experiences in this awareness-raising film created as part our Big Give Christmas Challenge 2017.
Laura’s Pen, another blogger and sufferer like me, shared a great article from the Huffington Post today. It’s discussing the issues around the UK medical establishment, particularly in the world of shrinkage, finally stopping their denial of M.E. as a complex multi system neuro immune disorder. It’s a tough read and it’s hard not to feel that sinking anger/despair but hopefully, one day, in my lifetime, it might happen.
Will the UK Establishment finally stop denying the reality of ME? From the @huffpost